[SydPhil] REGISTRATION OPEN: ACHEEV Symposium on Ethical Governance of Health Data Sharing in Australia, 23 October, Wollongong

[Yves Aquino]

Dear colleagues,

Apologies for cross-posting.

University of Wollongong's Australian Centre for Health Engagement,
Evidence and Values  invites you to a symposium on the ethical governance
of health data sharing in Australia. More details, including registration
link, below. Registration is free but space is limited, so please get in
quick!

ACHEEV Symposium on Ethical Governance of Health Data Sharing in Australia

Friday, October 23, 10:00 AM - 5:00 PM
Aspire Conference and Function Centre, Innovation Campus,
University of Wollongong, NSW, Australia

Advances in digital technologies, analytics and artificial intelligence
have created vast quantities of health data, and enabled their use for
purposes ranging from clinical care to research and innovation. The
Australian Centre for Health Engagement, Evidence and Values (ACHEEV) has
recently led projects that examined the complex ethical, legal and social
implications of health data sharing, privacy, consent requirements, public
benefit, data security, and data ownership. Our research has also
highlighted the need for greater clarity in legal, ethical, and policy
frameworks, as well as the importance of transparent governance and
community engagement.
This full-day symposium will convene a diverse group of scholars from
across disciplines and stakeholders from across health, research, policy,
and community sectors to discuss participatory approaches to the ethical
and regulatory governance of health data sharing in Australia.
This project is supported by the NSW Agency for Clinical Innovation and
Digital Health CRC Limited (DHCRC). DHCRC is funded under the Australian
Commonwealth's Cooperative Research Centres (CRC) Program.

INTERNATIONAL KEYNOTE
Amy Darlington, Director, Policy Partners, United Kingdom. Amy specialises
in deliberative engagement, participatory policy formation, strategy
development and strategic communications and stakeholder engagement. She
was the Engagement Lead for OneLondon (https://url.au.m.mimecastprotect.com/s/WNaCC91WPRTM7GLAgFoflfqfU0x?domain=onelondon.online), a
collaborative of London’s five Integrated Care Systems. In 2020 OneLondon
held a Citizen Summit, the world’s largest public deliberation on the use
of health and care data.

CONFIRMED SPEAKERS
•Tara Dimopoulos-Bick, Stream Lead for Design, Capability and Experiential
Evidence, Agency for Clinical Innovation, NSW Health.
•Professor Louisa Jorm, Foundation Director, Centre for Big Data Research
in Health, University of New South Wales.
•Dr Felicity Flack, Senior Manager, Strategy and Services, Population
Health Research Network.
•Associate Professor Courtney Ryder, College of Medicine and Public Health,
Flinders University.
•Associate Professor Rebekah McWhirter, ANU College of Law, Governance and
Policy.
•Dr Heidi Green, ACHEEV, University of Wollongong.
•Dr Yves Saint James Aquino, ACHEEV, University of Wollongong.
•The symposium will include a panel featuring members of an ACHEEV-led
citizens' jury on health data sharing.
For queries, please message Dr Yves Saint James Aquino (yaquino at uow.edu.au)
or Dr Heidi Green (hgreen at uow.edu.au).

Registration is free but space is limited. Please register as soon as you
can.
REGISTER HERE:
https://url.au.m.mimecastprotect.com/s/RBEXC0YKPviMP1qQDFDh9f9r_PV?domain=eventbrite.com.au

SUPPORT FOR PHDs AND ECRs
We are able to support a small number of PhD candidates and early career
academics in Australia working on ethical governance of health data
sharing, preferably using participatory, deliberative or
community-orientated approaches. We can fund full or partial interstate
return flight and two-night accommodation in Wollongong. Please email Drs
Aquino and Green with the following details:
1. Name
2. Current role: For PhD students include year of commencement. For ECRs,
please include year PhD was awarded.
3. Current affiliation, eg university, and location of university (to allow
us to estimate cost of travel)
4. Description of project - 150 words max.

About ACHEEV
The Australian Centre for Health Engagement, Evidence and Values (ACHEEV)
was established in January 2019. Our work focuses on health: the health of
people, other animals, society and the planet, and how all of these things
are connected. Our mission is to make health systems more inclusive and
democratic. In everything we do, we ask how we can work towards greater
justice and equity. Visit our website to know more:
https://url.au.m.mimecastprotect.com/s/1UAbCgZ0N1imQMOKxs2iwf4wAF4?domain=uow.edu.au

Hope to see you there!

Best
Yves

-- 
*Dr. Yves Saint James C. Aquino, MD, PhD*
He/him/his
Postdoctoral Research Fellow
Australian Centre for Health Engagement, Evidence and Values
University of Wollongong, New South Wales, *Australia*
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